Our community
MezI am 53yrs old & was diagnosed with throat cancer this year. I have since undergone radiotherapy & chemotherapy treatment which i finished late October. I have a great sense of humor & am very bubbly but since going through my treatment i quite often feel "alone" like nobody understands me.
Head and neck cancersI am a survivor
bevIn June 2007 I was diagnosed with Stage 2 Uterine Cancer. I had a modified radical hysterectomy and had lymph nodes removed in July. Testing of my tumour it was found that I had faulty cancer genes and was referred by my gynaceologist oncologist to a genetic professor. My grandfather and father both had bowel cancer so this was a good start. In September that year I had 28 doses of radiation. I now have to have annual colonscopies and every second year I have a gastroscopy. I see my gynaecological oncologist every 6 months and radiation oncologist in between those 6 months, so evey 3 months I have a check up. I don't mind the check ups, at least if the cancer came back it would be found early.
I have been married for 42 years in May, and have 3 adult children, and 5 grandchildren.
I have retired from full time work.Uterus cancerI am a survivor
reindeerI was diagnosed with invasive ductal carcinoma (breast cancer)Grade 3 in Dec05, underwent Lumpectomy, chemo(FACx6) and radiotheraphy(30).
I was introduced to this Cancer Forum by my Breast Cancer Support Group.
Breast CancerI am a survivor
journeygalBreast CancerI have cancer
harkerI am interested in finding ways for this site to support personal writing by people living with cancer and their carers. Information sharing is good, too, and I like being able to do that. But my main interest here is in uncovering myself via writing. I want this blog space to enable me and others to do that.
Update: If there are people who start to share something as writers, rather than as information seekers or people with a specific communication need, then I think this site will add something to the process of recovery and living with cancer. Well, actually, I know that is the case already. The evidence is there. I'm getting a lot out of this.
Multiple myelomaI am a survivor
SailorI have had cancer for the last eleven year, three lots of radiotherapy and now regular drug therapy. It slowly advances! I was an academic but have now retired but remain active as a volunteer in a naumebr of areas.
Prostate cancerI have cancer
CATSI am 54 years old I have Multiple Sclerosis and now Cancer. I have a totally weird sense of humour-I laugh a lot.I have a gorgeous cat and dog and I have a wonderful family and friends.
Bowel cancerI have cancer
nickijA married mother of a two year old daughter and running a business(that I am now desperately trying to sell) that was diagnosed with a brain tumour (oligodendroglioma II no deletion chromosomes) and a maxillary giant cell tumour Christmas Day 2008, struggling with both my tumours having returned after initially thought to both have been completely resected.
Brain tumourI have cancer
jodielee12I am 55 and am about to under go radiation treatment at Charlie Gairdner Hospital. i am from the country and have left all my family behind to come and have treatment. i am staying with friends who will be my carers while in Perth.
Breast CancerI am a survivor
chris martin58yr old whose 83yr old dad has oesophageus cancer
Other (Specify)My loved one or someone I know has cancer- think basic
I am interested in natural therapies and sustainability issues.
NoneOther (Specify)
samexI am a bowel cancer survivor. I am 14 months out of treatment (6 months of treatment)and a teacher. I have a family - husband and 2 sons 20 and 15.
Bowel cancerI am a survivor
Jules2oooh, just me a ordinary past survivor of cancer and currently doing the treatment thing with another cancer! Bit more info on that one. Twenty one years ago i was diagnosed with secondary (lymph glands) amelanotic melanoma. Fortunately for me i outlived the medico's expectations. Now i have a squamous cell carcinoma in my tongue and throat. Have finished chemo now and waiting to do radiotherapy (commences next week on oct 1). Funnily enough October is the month i had my last cancer eradicated.
The oldest and strongest emotion of mankind is fear. And the oldest and strongest kind of fear is fear of the unknown" ~H.P.Lovecraft
I have to put this somewhere as i just found it and want to revisit it after i have pondered for a bit.
It's all about living in the NOW and enjoying what the Universe offers you! No benefit in the past & not worth worrying about the future - just trust!”
Head and neck cancersI have cancer
Zen-moment48 years old, single parent of 2 beautiful sons, working part time, enjoying life.
Breast CancerI am a survivor
vinoucheDiagnosed stage 4 lung cancer in early January. Three grown children and one grandaughter. The best husband ever.
Lung cancerI have cancer
flightHodgkin's diseaseI am a survivor
thakerI was the carer for my husband who was diagnosed in Mar 09 with GBM and passed away on 4 Dec 09.
Brain tumourMy loved one or someone I know has cancer
bobPre-authenticatedI have Medullary Thyroid Cancer M.E.N II
Thyroid cancerI have cancer- Jewel and Mark
Hi everyone.
After FIVE months of trying to find out what was wrong with my 57 year old husband Mark, he was finally diagnosed with what was supposed to be only stomach cancer on the 29th March 2010.
We were told he was only to have a full gastrectomy, however on the day of the operation it was discovered the disease had metastisised and thus my Darling has now had ( Easter Saturday) his Stomach, spleen, Gall bladder, One lobe of liver, Head of Pancreas and the majority of his colon removed, he now wears a colostomy bag.
It has taken 5 days for him to start to wake up from the induced coma he was in and he has finally opened his eyes for the first time last night (Thursday 8th April) when I went to talk to him in icu.
This gives me hope that he may just survive the operation and then who knows what the next part of the journey will be.....being so seriously ill has left him very very weak so I don't know if he will be offered chemo as yet.
I have joined this community with hope that I will learn something of what the future holds for he and our family.
Like many here already know, I am sure, the shock of this has terrified us, including our children (twins) who are only ten years old.....I am feeling very scared and lonely, I can't even imagine the terror my Darling husband must be feeling in his (still sleeping) head right now.
Anyhow I hope I have made the first step towards the light of understanding about how this will change our lives and where we go from here.
Thanks for reading this, I have tried to keep it breif for now, till my mind comes out of the fog to add more.
regards
Jewel
Other (Specify)My loved one or someone I know has cancer
VersaillonThe love of my life, Rob, was diagnosed in July 2009 with bowel cancer, one month before we were to be married.
On hearing the news, I first thought that life couldn't be so cruel to take away my soul mate just as I had found him. I didn't think I could keep going, keep living, not without him. It was just far too much for me to bear and for a moment, I crumbled. But only for a moment.
I have gathered all my strength, stood my ground and prepared to fight because I will not give him up. It's not an option.We've been married four weeks now. Rob started chemotherapy two days after our wedding and is going well as can be expected. The next six months are going to be difficult but I'm up to it. I can do anything while I have Rob next to me!
Bowel cancerMy loved one or someone I know has cancer- landerson
50 yrs old stage 4 disease, mother of 3 step mother of 2, happy relationship with partner Steve. Been through pleurodesis, 4 cycled chemotherapy, currently on Tarceva, have R.F. ablation
Lung cancerI have cancer
carolyn2in 2009 2 days before my birthday I was diagnosed with suspected breast cancer
Breast CancerI have cancer
bigmummaim 45 live in far north qld..i am single, have 3 children & am a nurse .i previously worked in aged care.i have bowel cancer with liver mets.just riding the roller coaster and enjoying the sunshine.
Bowel cancerI have cancer
Purple StarI was diagnosed with bowel cancer in 2006. I had two operations and 6 months of chemo (not fun) and certainly did not anticipate how my life would change (emotionally, physically and spiritually). In 2008, during my routine checks two tumours were discovered in my liver and so the journey began again with another 2 operations and radio active treatment. I would like to share my story & experiences and hear experiences from others. It has been roller coaster ride the past 3 years but despite all this I kept strong, positive and found the will & strength to carry on, and believe there is light at the end of the tunnel.
Bowel cancerI have cancer
Mazza41I am a 69 year old Mum Just been diagnosed with grade 3 breast cancer.Had 2 operations to remove lump.Fortunately it has not reached lymph nodes.Live with My Son and His Fiance and my Daughter they are all a great support to me.
Breast CancerI have cancer
wifeybWife (35 yrs old) and Mum (Owen 6 yrs) (Aayla 18 months) husband Richard(35) diagnosed dec 2009 with advanced peritoneal stomach cancer
Other (Specify)My loved one or someone I know has cancer
Jods77My dad has advance NSC lung cancer
Lung cancerMy loved one or someone I know has cancer
barbiedoll2010Brain tumourI have cancer
Mrs EltonMy husband has been diagnosed in February 2009 with oesophageal cancer and it has spread to his abdomen. We have two sons, aged 6 & 8. We have been trying to keep things as 'normal' as possible for them throughout our journey to date, it is a constant challenge. We have a new 'normal'. Am interested in communicating with others who have similar aged children on coping strategies etc, but also just connecting with people who know first hand how it feels to have cancer invade their family. *** Update December 09, CT scan reveals secondary tumour on the brain, prognosis not good***
Head and neck cancersMy loved one or someone I know has cancer
margcim tryin to beat this but it sometimes gets n top of me
and its hard to stay positive
so can anyone out there help me or offer advice please
Breast CancerI have cancer
StaceyI was diagnosed with Stage C Bowel Cancer in November 08 at age 39. Tumour was successfully removed and I have since undergone 6 months of Folfox Chemotherapy.
I am currently out of treatment and am taking things one scan at a time.
I am a mother of 2 children and have a wonderful husband who has supported me through this time.
Bowel cancerI am a survivor
AndreaBrain tumourMy loved one or someone I know has cancer
janalexI'm 56, and had a mastectomy in 2007. It was triple negative and grew so rapidly that at 1.5cm at biopsy, it was 2.8cm upon removal 8 days later.
Breast CancerI am a survivor- sally@cancercou...Other (Specify)I am a health professional
NewbyPre-authenticatedNoneMy loved one or someone I know has cancer- gabrielle@cance...NoneI am a health professional
KmI'm 23 and my mum has cancer in the oesophagus- she is 53
Other (Specify)My loved one or someone I know has cancer
Valerne54 year old woman who is in shock following male partner's diagnosis of bowel cancer. I am wanting to help and be the best support I can be.
Bowel cancerMy loved one or someone I know has cancer- John@cancercoun...NoneI am a health professional
MelissaAt 18yrs old in 2005 I was diagnosed with Hodgkin's Lymphoma. I had 6 months chemo and have been a survivor ever since. I study archaeology at uni and juggle the rest of my life.
Hodgkin's diseaseI am a survivor
mopityBowel cancerI have cancer
warrior woman47 mum of 4, diagnosed with grade 2 oligoastrocytoma 2008
4 craniotamies, 1 brain infection, re-constructive skull implant
Horticulturist, Organic Farmer,loves gardening and travelBrain tumourOther (Specify)
linda64I am caring for my husband Tony who has bowel cancer
Bowel cancerMy loved one or someone I know has cancer
Teacher MumI am a Secondary School teacher in country Victoria. I have two beautiful children under 5 and a wonderful husband. I am learning to LIVESTRONG and to take one day at a time.
Uterus cancerI am a survivor
MartinoI am 53 who is currently undergoing the first stage of treatment for lung cancer (detected earlier this year)
Lung cancerI have cancer
valdiagnosed jan 09 stage 4 ovarian cancer now aged 56 undergoing chemo cisplatin caelyx
Ovarian cancerI have cancer
willowFinished chemo for breast cancer - about to start radiation
Breast CancerI have cancer
benliseccaI am a 41 yo mum of 3 beautiful kids (11, 9 & 20months)and I was diagnosed with anal cancer 3 Nov 08.
Chemo and radiation - It was a tough time with lots of horrible side effects too "delicate" to mention here ...lol....
I am now 6 months post treatment and absolutely living each day to the max. My skin has healed and I am appreciating the "new normal". I have just had scans and colonoscopy (18/8/09)and there is no tumour.... very relieved! My energy levels are starting to return and I have just signed up for a soccer team - something my kids find hilarious!
My last check up scan has found cancer in my thyroid. Thankfully completely unrelated to my first cancer. I've had a hemi thyroidectomy last month and am now booked in to have the rest taken out in December and the radioactive iodine treatment in January.
Still playing soccer
Still having a great time. Cancer still sux thoughOther (Specify)I am a survivor- cancer010Pre-authenticated
Cancer, Breast cancer. "By empowering patients facing challenging healthcare decisions, we strive to improve patient quality of care and quality of life through knowledge-sharing and innovative applications."
Bladder cancerI am a health professional
larn75my husband was diagnosed with bowel cancer in march, currently in remission. baby steps!!!!
I am also on a mission to get a retreat built, Pabs Place, for people with serious illness and their families in the Gold Coast Hinterland. One which is affordable if not free. Wish me luck!! I can make a lot of noise for such a little girl LOL.Bowel cancerMy loved one or someone I know has cancer
loveandhealMy partner is 45 years old and has lived with pancreatic cancer and multiple liver metastises for 5 years
Pancreatic cancerMy loved one or someone I know has cancer
caring partnerMy partner was diagnosed with Bowel Cancer that has spread to the liver on 19th August 2009.He is just having his 8th Chemo treatment.His doctor said to have a colonoscopy after he turned 50.He is 49 now.I am struggling at times with what we have to deal with.We live in country WA.I am new to blogging.
Bowel cancerMy loved one or someone I know has cancer- vivienneoc@canc...
I am a staff member of Cancer Council NSW. I work in the Publications Team, writing and editing booklets in the Understanding Cancer series. I have an interest in complementary therapies.
NoneI am a health professional - i_t
a daughter coping with cancer
Other (Specify)My loved one or someone I know has cancer
frangipanii was diagnosed in Sept 09. Had a mastectomy in Oct 09. Just completed chemo last week and I am on Herceptin every 21 days.
I was lucky not having many harsh side effects. I just suffer very badly of swelling and numbness of my feet. the toes are so bad that they have gone black. sometimes i cannot walk from the kitchen to my bedroom. My oncologist said that it will go away but it is over a month and i am still suffering.Breast CancerI am a survivor
Butterfly34 years of age & diagnosed with Cancer of the cervix in 2006. After surgery, chemo and radiation I am currently healthy, planning to stay that way and happy to be alive. Lucky mother of 2 beautiful boys.
Other (Specify)I am a survivor
BrigaleI have have just found out 9/11/2009 that I have Uterus Cancer
I am a 33 yr Old with no childroen.Uterus cancerI have cancer
Ross1958I am a 52 year old male. I was diagonsed with a squamous cell carcenoma in May 2009. I had the tumor removed, right jaw replacement & reconstruction in June 2009, followed by 7 weeks radio & chemo therapy in August & September 2009.
Head and neck cancersI have cancer
Daisy WMy Mum was diagnosed with a Glioblastoma Multi-forme in Aug 09. I care full time for my Mum and would like to find others to talk to.
Brain tumourMy loved one or someone I know has cancer
Belinda JaneI'm Single live near Kilmore Vic .I live on a little hobbie farm.
Love the outdoors , work in aged care for 13yrs.Kidney cancerI have cancer
emilyk91Hello I'm Emily. I live in Queensland. Last year (2009) in February I was diagnosed with a rare brain tumour (rhabdomyosarcoma). After a few months of heavy chemotherapy, and also having radiation for 5 days per week for 6 weeks, in July I got the news my cancer was gone. I kept doing chemo though all the way through until December. This year (2010) my doctor finally told me I didn't have to do any more chemo which made me pretty happy. I would love to meet new people who have/have had cancer, because I have never met anyone my age, only adults who have/have had cancer, and it would be really nice to talk to someone/ make a new friend who understands me and everything I've been through. But I also don't mind talking to adults either! haha. This year I plan to get back to a relatively normal life. I have been in remission since February 2010
, and in May (2010) it has been confirmed I'm still cancer free!
Brain tumourI am a survivor- RobertaPre-authenticated
I have just been diagnosed with pancreatic cancer. Starting chemotherapy. Had to stop work. Family and friends very supportive.
Pancreatic cancerI have cancer
choc2ruleLung cancerMy loved one or someone I know has cancer
flicBowel cancerI am a health professional
DCBreast CancerI am a survivor- ericPre-authenticated
47 yo male, wife of 22 years with advanced breast cancer and have 3 teenage girls and 1 dog and a rat at home
Breast CancerMy loved one or someone I know has cancer
MerrywidowofthewestNursed my darling through terminal esophageal cancer. Passed 26 jan 2008.
I have a radio show called the merry widow show which is designed to celebrate life while recognizing that death is a part of living.Other (Specify)Other (Specify)
customlineBowel cancerI am a survivor
reneewhte7I live in Darwin and I am undergoing treatments for my Breast Cancer for the second time.
Originally, I found a lump in my right Breast in 1998. I had the lump and sample Lymphnodes removed. Then I received three months of Radiation treatment.
Then late last year, I found another lump under my right arm. I have since had all of my remaining Lymphnodes, ones with and without Cancer cells removed. Currently, I am receiving six months of Chemotherapy treatment, which will be followed by Radiation and some sort of Hormone Treatment.
Receiving the chemotherapy treatment is preventing me from going to work. I have had very high temperatures and very, very low white cell counts. When I receive each new dose, I suffer from what seems to be over-anxiousness and dizzyness at the same time. So I find normal, day-to-day life very difficult to cope with. I have to lie down all the time, till this feeling goes away from me. I can't stay in the kitchen long enough to cook and I am not able to go out of the house.
Does or has anyone else felt like this for long periods of time??? Is this just what they refer to as Chemo dizziness???
Breast CancerI am a survivor
grantvilleflierI am male who is a survivor of prostate cancer, of eight years. Operation then 12 months latter hormone treatment for six months radiation for 33 days and a further 12months of hormones. My psa readigs for the last 7 years undetectable. My age 68years old
Prostate cancerI am a survivor
serenePre-authenticatedBreast CancerI have cancer
PeterR76 year old, retired clergyman living on Bruny Island after an active ministry overseas in South East Asia and then in Tasmania for the past 34 years, including Hobart for 20 years.
Non-Hodgkins LymphomaI am a survivor
nikI was diagnosed with Thyroid Cancer April 2009 and had total thyroidectomy and central neck clearance in May '09. I had vocal cord palsy as a complication of my surgery - but can finally sing again although not well (but I never could!!). I have just had to have further surgery to have malignant lymph nodes removed from my neck, but have just been told that it's all looking good for me to be cancer free - finally!!
Thyroid cancerI have cancer- DavidBPre-authenticatedMultiple myelomaI have cancer
- akaPre-authenticatedBladder cancerI have cancer
Shamiz WealthCervical cancerMy loved one or someone I know has cancer
cath@cancervicI am a staff member of Cancer Council Victoria.
NoneI am a health professional
Katie GCMarried mum of 5, survivor of thyroid cancer by 13 years now my dad has cancer and not looking good at all.
Other (Specify)Other (Specify)
Hopeful28 year old caring for my husband with recently diagnosed brain tumour. We have an 18 month old son.
Brain tumourMy loved one or someone I know has cancer- drac
carer
Brain tumourMy loved one or someone I know has cancer
CatnipI'm a 39 year old woman diagnosed 10th November 2009 with squamous adenocarcinoma Stage IIIB metastatic cervical cancer. Shit, give me a martini.
Cervical cancerI am a survivor- Judith
I am one of 3 sisters looking after our father who was diagnosed late 2009 with advanced cancer. As his treatment and the disease progresses I am finding his needs are different and I am not even sure what they are most of the time!
Bowel cancerMy loved one or someone I know has cancer
smmeeIt is my husband who has cancer. Melanoma and he is already at pallative care. We have a 10 month old son. We start our first chemo soon
MelanomaMy loved one or someone I know has cancer- Karen Rose
In 2007 at 46 yrs diagnosed with oral cancer. T4N1M0 Had 75% of tongue removed - neck dissection - flap from thigh. Radiotherapy & Chemo for 6 weeks, Diag with Osteoradionecrosis, Mandible jaw removed & reconstructed with bone from hip. Tongue flap redone. 30 Hyperbaric Oxygen Treatments. Looking forward to getting back into workforce part time when all my treatments are finished.
Head and neck cancersI have cancer
CarlCHad chemo and radiotherapy. No of surgical trauma
Head and neck cancersI am a survivor
christine89I'm 20 yrs old, and on July 5 this year, was told that I had a brain tumour. The past few months have been stressful, scary, painful, etc, but mostly it's been a huge adjustment.
Brain tumourI have cancer
JulzI'm a career for my husband who has lung and bone cancer.
He is 20 years older then me but I did not expect him to get sick within two years of marriage.Lung cancerMy loved one or someone I know has cancer
DizzyDeePancreatic cancerMy loved one or someone I know has cancer
MissRenI am 35 year old woman who was diagnosed with breast cancer last year. Since that day I have had the alien removed from my body, had chemotherapy and radiation treatment. I am now recieving hormone therapy.
Breast CancerI am a survivor
jules jpI found the breast lump myself while on holidays. In Nov 2007 after fine needle biopsy and ultrasound, I was diagnosed with invasive ductal & lobular carcinoma grade 3, 22mm ER+ and PR+ 0/1 sentinel node biopsy. Had a left lumpectomy and wide excision to clear margins. Followed by FAC (6) and radiation (25). Currently on tamoxifen.
Breast CancerI am a survivor
ABCDInterested in helping people with cancer, high blood pressure, stress and other seemingly non curable problems.
NoneI am a health professional
wlee9462I am 33 years old and just got diagnosed with endometrial cancer today. I have not had a chance to hace children which is a real pity for my partner and I; but we are exploring different options for the future. I have a wonderful supportive partner and some great friends. I know this is going to be a bit of a roller-coaster ride. I am joining this group to see whehter I can get in touch with other young women like myself who are in similar situations.
Uterus cancerI have cancer
Leah McGI am a mum suffering Cancer. Looking for some others in a similar situation to talk to.
Bowel cancerI have cancer
felixr@cancerco...AdministratorExpertGroup creatorHelplineOther (Specify)I am a health professional- Kimp@cancercoun...
I currently work in the Cancer Information and Support Division of Cancer Council NSW. My main project is working with the 274 cancer support groups in NSW. These groups are face to face or telephone groups. I have been faciitating programs for support group leaders that enhance the capacity of the groups. Engaging with the Online Community is new for me and I'm keen to see how the knoweldge I have working with groups, can be translated into Online Groups.
Other (Specify)I am a health professional
KrystleI am 23 and live in South Australia. I was diagnosed at 21 with cervical cancer. I had chemotherapy, radiotherapy and internal raiotherapy. I am in remission.
Cervical cancerI am a survivor- seashell
I am a 25 year old New Zealander who has lived in WA since 2008. My parents and my brother and his fiancee are all living here as well.
Pancreatic cancerMy loved one or someone I know has cancer
1Dog1CatHusband diagnosed with pancreatic cancer in Nov 08 (when I was 6 mths pregnant with our 1st child). Based in Wellington, NZ.
Pancreatic cancerMy loved one or someone I know has cancer
piggy92Other (Specify)My loved one or someone I know has cancer
ViktoriyaNoneOther (Specify)
